Living Polymyositis
My New Boyfriend. Rituxan (Rituximab)
Posted by Tia | Filed under rituxan, rituximab
It's awkward seeing old doctors. Especially when you've never told them you didn't want to see them
again. You kind of just stopped coming after your last appointment. I got a letter in the mail from
my old pediatric immunologist today. I should say that I got it from the hospital. But her name was
signed, though I doubt she'd actually signed it. It was a piece of her stationary with her signature
on the bottom of the page. A permanent fixture, only the body text changing. It was an invitation to
an informational panel discussion about making the transition in care as a young adult. It's taking
place months away. By that time it will have been five months since I've started taking Rituxan.
When my rheumatologist suggested I try Rituxan he was cautiously optimistic as to what I could expect
to gain as far as strength. I see myself as pretty realistic, I'd be happy with being able to raise
my head on my own after it's fallen down towards my chest. So almost a month in and I am noticing small
changes. Mainly with my neck and trunk muscles. I have no idea what it'll be like in five months.
And I'm already wondering what my old doctor will say when she sees me.
If you're one of the 'special' ones like me your polymyositis has resisted all of the usual medications to treat it.
When my doctor told me about the new trials taking place testing the efficacy of Rituxan in treating polymyositis I was really excited.
Any improvement would be welcome. I didn't qualify for the trial going on in my area. But my doctor has prescribed Rituxan
for me and I had my first dose a month ago.Here's a little information about some of the results of other trials.
I write and I have polymyositis. I also like reading books and watching old movies. I created this site as a pace to share all of the things that I like and some that I don't.
April 13th, 2009 at 8:08 am
I'll definitely have to ask my doctor about that.